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We have a plan Options
jenni_b
#1 Posted : Friday, January 20, 2012 10:05:07 AM Quote
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Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hi

We have a plan
An escape plan!

I am going to have a scan today then out

I am (deep breath) going to have the cyclophosphamide again
I'm going to have a mini pulse of steroids with it
If I flair again after
Then it's double steroids

I need the left knee replaced as it's causing probs in pelvis foot leg and hurts everything not least that knee. I need to have that done
The right one although 7/10 knackered it's prob going to last a bit more
So
I'm going to have the left done
Then when recovered sufficiently
Have the right one synovectomy and debridement done

I'm exhausted
Bernice is ill

I must get home

Thanks so much for all the supports i so need them
how to be a velvet bulldoser
suzanne_p
#2 Posted : Friday, January 20, 2012 10:34:25 AM Quote
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Location: Buckinghamshire
hi Jenni,

glad to hear you'll be home today.

good luck when you take the next dose of the new drug,

really sorry to hear about your knee's. mine aren't good with Osteo but i cling on to them as i couldn't face anything done with them yet.

hoping things turn around for you quickly,

Suzanne x
jeanb
#3 Posted : Friday, January 20, 2012 10:37:45 AM Quote
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Location: Timperley
Another deep breath here. Why are they giving you the drug again? I know the CRP etc have decreased so presumably they think it is helping the RA. Nosy of Timperley xx K ordered yesterday so should be with you by Monday. Hope this is OK xxxx
jenni_b
#4 Posted : Friday, January 20, 2012 10:49:33 AM Quote
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Oh God
Bernice has scarlet fever

I have told mum to get me but she says not til I've have scan at 4.30 as I have to look after me and her and dad and Kay (who I have every wk from homestart) are all with her.

I keep crying
how to be a velvet bulldoser
Dorothy-W
#5 Posted : Friday, January 20, 2012 11:48:11 AM Quote
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Location: east anglia
don't know what to say but sending a cuddle sweetie,dorothy
dorat
#6 Posted : Friday, January 20, 2012 12:17:47 PM Quote
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Location: Huddersfield
Pleased you are getting home today Jenni, but have your scan first and try not to worry about Bernice (useless thing to say because I know you will!). Scarlet fever is not the dreadful disease it used to be, once on antibiotics she will be fine, and it seems she is being well looked after.
Make the most of the next few hours before the scan and REST!!
Hope Bernice is feeling better soon.

Love Doreen xx
ellie50
#7 Posted : Friday, January 20, 2012 12:52:28 PM Quote
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Location: Surrey
Oh Jenni, how awful for you but I believe your Mum is right - you must have the scan and I agree with Doreen, the antibiotics will help your little one through and you'll soon be with her and that will cheer both of you up.

Best wishes...

Ellie
jeanb
#8 Posted : Friday, January 20, 2012 1:48:37 PM Quote
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Berny will be fine with the antibiotics and should pick up quite quickly. Your Mum is spot on about you remaining to have the scan. You have every right to cry xxxxxxxxxx
hen
#9 Posted : Friday, January 20, 2012 1:55:46 PM Quote
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Thinking of you Jenni.
Pleased you will be home later today AFTER your scan.
Hope Bernice recovers quickly, I'm sure she will.

Sending hugs
Diane x
SueB
#10 Posted : Friday, January 20, 2012 1:58:28 PM Quote
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Location: hampshire
oh Jennie - someone somewhere really has it in for you. But your Mum is right. You need to look after yourself- so that you can be there for everyone else. Bernice will be OK and you will soon be home for her. Many hugs
Sue
jenni_b
#11 Posted : Friday, January 20, 2012 3:01:10 PM Quote
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After all that

They've cancelled the scan and are giving it through out patients

how to be a velvet bulldoser
bevie
#12 Posted : Friday, January 20, 2012 3:58:25 PM Quote
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Typical! hope that means you are going home though.

Bevxx
Kathleen_C
#13 Posted : Friday, January 20, 2012 4:30:16 PM Quote
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Hope you and Bernie feel better soon, Jenni.

Hugs,

Kathleen x

Ailsa-H
#14 Posted : Friday, January 20, 2012 7:56:44 PM Quote
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Hope Bernice soon picks up and you can get that scan and move on a bit. What a horrible time you have had Sad Thinking of you all xx Ailsa
Naomi1
#15 Posted : Friday, January 20, 2012 10:38:16 PM Quote
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I'm glad you will be home soon. I wish Bernice a speedy recovery. The last thing you need right now is more stress but you'll probably feel less stressed by being nearby for her. Take care X
Louise09
#16 Posted : Saturday, January 21, 2012 12:55:53 PM Quote
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Location: Saddleworth, UK
I'm so sorry about the scan and Bernice.

Keep your chin up and I hope the antibiotics kick in as quick as they should and the scan date is soon.

Lxxx
jenni_b
#17 Posted : Saturday, January 21, 2012 2:54:14 PM Quote
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I am home!
how to be a velvet bulldoser
jenni_b
#18 Posted : Saturday, January 21, 2012 2:58:00 PM Quote
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Dear nosy of timperley

Homebird of Southampton wishes to convey her warmest greetings
Crp etc are much improved with steroids and rest
The cyclophos is the last hope in a long line of drugs and the consultant has decreed it a good idea to give it another try
I just need to get through these few cycles
It might might work

Esr down to 80 now so it's getting there.

how to be a velvet bulldoser
bethbrown
#19 Posted : Saturday, January 21, 2012 2:58:05 PM Quote
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welcome home. Bet you're all glad - how is Bernice - have the anti-biotics kicked in?
jenni_b
#20 Posted : Saturday, January 21, 2012 3:28:34 PM Quote
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Location: nr Southampton
Im amazed that bernice has got such lot brighter with 4 doses of anti biotics
It's powerful stuff eh?

She's still got a temp but her rash is lots better

Michael has tonsillitis so that's the next battle
Oh to be well
To have a normal family life ....
how to be a velvet bulldoser
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